Tuesday, June 4, 2013

Prayer Request

I have gone back and forth about posting on the blog about Eli's latest issue mostly because I tend to take comfort in denial. But today, as I am overcome with anxiety, I feel strongly that I need to post a specific prayer request for Eli. Time and time again, God has showed up in miraculous ways as a direct result of specific prayers for Eli's healing.

As I have spent time recalling all the miracles we have witnessed, I am praying for God to show up big time.


Today, we are asking for some big prayers.

We knew when we were pregnant with Eli, that there were some underlying neurological issues the doctor was unable to pinpoint. Never in our wildest dreams, did we ever imagine the path we would be asked to walk.

About a month ago, we had an appointment at Children's Hospital for Eli's annual piggy check with the Dr. Mehlman. As Eli was showing off his awesome walking skills, the Orthopedist pointed out a issue with Eli's eyes. After taking Eli to the doctor the next day for an eye check, we were given a referral to a pediatric ophthalmologist. The doctors are concerned that Eli is losing vision and that his brain is rejecting his eye.

Our early intervention team has been an amazing support & resource. Our services facilitator contacted Cincinnati Association for the Blind who, despite not having a specific diagnosis, graciously offered to go to our appointment with us and explain the doctors findings. Eli's physical therapist has come out to see Eli and evaluate him, despite him being discharged from PT, and other members of the team spent several hours going over Eli's specific skill sets so we would have a very clear idea of a definite baseline as we move forward.

The happiest kid EVER
After waiting nearly a month, we finally, today, have our appointment with the Ophthalmologist. In true Eli style, he is making things complicated. He has been running one of his infamous fevers since Friday. The eye doctor will not see him today if he is running a fever. Eli woke up this morning fever free however, we are asking for prayers that he remains that way through our 1.5 hour appointment that begins at 12:15.

If you are the praying type, we are asking for specific prayers for Eli & us today :)

  • For Eli, that he will sail through this evaluation easily (which is scheduled during nap time) , and without any undo stress.
  • That Eli's vision and eye health be restored.
  • That Dr. Burke will be able to come up with a conclusive and appropriate plan of action to correct issues with Eli's eyes.
  • For Eric and I to have a calm heart and clear head that we are able to understand and hear everything the doctors are telling us.

I think Eli could rock some pink glasses? Real men wear pink right ;)?

Both Eric and I know God is with us, but as parents, we are worried at what this looks like for Eli's future. We are praying for another miracle and know that God will show up, even if it isn't how we expect.

Thank you everyone for your love and prayers. Our hearts break for our son as he experiences another challenge. We have taken comfort the texts and emails that have been filtering in throughout the evening and this morning, so thank you. We will keep you all posted after our appointment :)

This is what Eli has to say about fear :)

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