When searching the internet or message boards for advice regarding club foot and treatments, you never seem to see much information past getting the brace. It's like all the materials just magically fast forward a couple of years. Even in Dr. Ponsetti's official stuff it is almost like those toddler years are just a side note. But since I am in the middle of this stage, I wanted to report on what it is like to have a very active toddler wearing a brace at night, and how our recent transition to a big boy bed went.
I had been fielding questions from family and friends for a little while about when we would be moving our 20 month old son Jamie out of his crib. And to be honest, I wanted him to stay in the crib as long as possible, first and foremost, because it meant that he was still my baby. Once he moved into a real bed that was just one more reminder of how he was growing up too fast. Selfish reasons aside, the other primary reason was I couldn't imagine how my energetic monkey of a child would do in a bed with hardware strapped to his feet. I was afraid that he would fall out and hurt himself, get tangled in the covers, or try to walk across the room and wake us up in a fit of screaming.
Jamie was not concerned about any of this, however. He decided one day while my husband and I were on vacation that he didn't want to stay in the crib during his nap and climbed (and fell) out. Luckily my mother was watching him on our video monitor and managed to mostly catch him. This started a week of watching anxiously while he falls asleep, hoping that if he fell out that he would land on the pillows on the floor. Sometimes he did, sometimes we caught him, and sometimes we didn't. And that didn't stop him - so it was clear we had to move him into something lower to the ground, and fast!
We found a youth bed at Ikea that Jamie hopped right into and said "night night!" It was several inches lower than the toddler bed our convertible crib could change into. I put it together in an afternoon and we tried our first night in the bed with the Dobbs brace. We expected it to be a total disaster, but that first night had mixed success. He fell asleep pretty well in the bed, but there were times that he fell asleep on the stuffed hippo on the floor. We also had to help adjust him several times as he tried to go around the room and in and out of the bed.
|one peaceful moment from the first night|
The next day's nap was worse - he just wanted to stay up and play! Eventually he fell asleep on the hippo, and woke up highly upset that he was on the floor. :)
|second night and already sleeping much better!|
Some specific suggestions I wanted to share in looking at this next stage for your family:
Buy a cheap twin or youth size bed.
I was horrified to see the damage on the inside of my lovely wood crib, and after just a week the side rail and foot board of the youth bed were quite nicked up. The in and out of the bed with the metal brace is very rough on the furniture and should be expected. The distance to fall is a concern when learning to sleep in a bed, so the bed should be a low to the ground as possible. It should be set up so one side is against a wall (if possible) and the other side have a side rail. I know some parents of very active children who put the mattress on the floor initially.
They are more mobile than you may expect.
I had feared that he would have trouble moving around, but my son can almost walk in the brace, and has no trouble crawling around to get where he wants. I took away the big fluffy comforter for now and just put in lots of small pillows and a small quilt. Jamie was getting caught in the comforter but doesn't really need it yet anyway. The pillows help cushion him against the wall, and he loves them. He is able to get in and out without any assistance and the best part is, he knows to sleep in his bed. That conditioning from the crib is very strong.
They may become more aware of the brace and how it is restricting movement.
Jamie has told me several times in the last couple of weeks that his shoes are boo boo and tries to take them off. He does sometimes even fight me when I try to add the brace to the shoes. We have stuck with it, though, because I really felt like this initial time with the bed would be crucial in setting the expectations for night night as my toddler becomes a pre-schooler. We just had our every-3-month-appointment with Jamie's orthopedist and still have no update on how much longer he will be in the brace. He is correcting very well, thankfully, but we had hoped to have some idea of the timeline now that he has been braced for a year and a half.
Listen to sleep signals and tire them out.
The freedom that a toddler bed offers is an understandable temptation. I have found that getting Jamie down for naps is usually much easier and he will sleep better if I listen to his tired signals. So when we are out doing errands and he is yawning, I have to force myself to head back rather than squeeze in one more stop. If he gets overtired because I was stretching him he takes much longer to fall asleep, and we have actually had to wake him to make sure he would be able to sleep at night. Doing energetic activities like going to the park in the morning also really helps tire him out so that he just wants to sleep, not stay up and play.
We are starting potty training and he is doing GREAT! Trying to work this in with the brace has been interesting, so I will do another post with how that whole thing works through the perspective of raising a club foot child.
This is a guest post from Victoria, who has been a bloggin' machine for Faith Feet & Love. She's previously written an Our Story feature as well as sharing some advice about the Importance of Humor when dealing with clubfoot. We want to thank Victoria for writing such an awesome guest post! If you'd like to write a guest post, please contact us for more details.
Victoria, thanks for another great post.ReplyDelete
I was wondering about this exact topic the other night. I came into Eli's room, and at only 10 months he was looking kinda big for the crib. We have a hard enough time keeping his braces on at night (he can take them off by himself) that I can't even imagine what a toddler can do!
I also think you have a great tip about getting a cheap bed. Eli's braces have been brutal on all our furniture.
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They are definitely creative, these little ones of ours. That's impressive Eli can still wiggle out of them, Jamie just spends hours trying to undo the buckles. Once he does I assume it's all over.ReplyDelete
I had someone just make another good suggestion on my facebook- "One additional piece of advice -- put up a sheet of plexiglass on the wall to protect it from dings." Clearly I could have already used this, if you notice the sad state of my sweet yellow wall from being next to the crib. If we ever re-paint his room I will definitely try that.
Hello I was just browsing around to see what I could find on leg/feet braces on toddlers, because my son has blounts disease and he is going to get braces tomorrow... well hopefully they fit him for braces and not surgery. My son is 23months old and I was just seeing what I could find on here as a support group. Also to see how others are dealing with it. We are having to go to St.Louis,MO tomorrow at 5:45am...... a road trip but we have been there back in October 2012. They said his legs should straighten out before 2yrs old and his feet should do the same as well. If not we are to go back and see the dr again. Well it did not get any better and his feet litterally go in and he cant walk/run/play without tripping and falling over his own feet. He often wants to be held and dont want to walk. :(ReplyDelete
I hope you can give me some heads up on the braces and how the proceedure is done, and was it hard with a 20month old?
Hi Sharifah, I'm sorry to hear that you're having some troubles with your son's legs / feet. I speak from experience when I say it definitely can feel overwhelming. Eli (who's 17 months) has spent a lot of time wanting carried because of his braces.ReplyDelete
I can't speak directly to what a 2 year old might experience, but what I can say is that we had to try a couple of different braces / shoes before Eli found a pair he was (literally) comfortable in. We settled on a Dobbs bar, and Eli has done much better, and tolerated them much more.
But it is a lot of work, and it's a daily grind. But obviously it's all worth it for Eli. :)
Let us know how the doctor's visit goes, and I hope that you can find a solution that will work for your son.
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To protect your baby from falling out,toddler bed bumper pad will provide a comfortable enclosure. Whenever he rolls over or moves around the bed, it will work like a safeguard. The installation won’t be complicated and time-consuming. You just need to place the bumpers under the bed sheet of your mattress. It will ensure a comfy and soothing support and feel for your baby. He won’t get hurt by the soft yet firm bumper foam that he might get from the metal bed rails.ReplyDelete
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