Faith, Feet, and Love is really a blog about hope and about persistence. It’s about not giving up or giving in. But that doesn’t mean we don’t feel the grind. Eli has had a rough time, and so have Heather and I.
We have overcome a lot with him, not just his feet. We’ve had to wrestle with a diagnosis of Down Syndrome. We’ve been told he may have a fatal kidney issue. We panicked as Eli tried to choke himself during delivery. We’ve had a constant struggle with getting the right shoes / braces for Eli’s feet. And now we’re scheduling an MRI to figure out why Eli is growing so fast.
Babies are supposed to grow about .5 inches / month.
Eli has grown 4.5 inches in 2 months. On top of this, he seems to be having some issues that may or may not be related to Chiari. (update: they are not!)
What made us start noticing these additional problems was the way Eli’s behavior changes at night. He doesn’t seem to mind going to sleep or wearing his braces during nap time. But when it comes to bed time he throws a fit.
It’s hard enough to deal with all the sleep issues caused by braces, not to mention the developmental delays that Eli is facing because of his massive size and braces.
There are days when, as parents, we just want things to be “normal.”
Of course, the “benefit” of all of these medical issues we’ve had with Eli is that we have a very good idea of just how bad (and how quickly) things could be worse. And for that, we’ll always be grateful for a merciful God.